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The Chinese dad making medicine to treat his dying son

The Chinese dad making medicine to treat his dying son

13 Sept 21:32 Key points summarised by AI
  • Desperate to save his two-year-old son, Haoyang, who suffers from the rare and fatal Menkes Syndrome, Chinese father Xu Wei built a home laboratory to create the unavailable copper histadine medicine.
  • Despite only a high school education, Xu self-taught pharmaceuticals, translated complex medical documents, and successfully synthesized the treatment, first testing it on himself before administering it daily to Haoyang.
  • While the homemade medicine only slows the disease, it has reportedly normalized some of Haoyang's blood tests, and Xu's remarkable initiative has inspired VectorBuilder, a biotech lab, to launch gene therapy research into Menkes Syndrome.
  • Xu's unwavering dedication highlights critical gaps in medical access for rare diseases in China and serves as a powerful testament to a father's love, inspiring hope for his son and potentially others.
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